FH Canada Governance Structure
The governance structure for the FH Canada registry initiative is shown below. The Scientific Board, with representatives in basic, clinical and health outcomes research leads the registry. An international Advisory Board, with representatives from countries with a well-established FH registry will advise the Scientific Board. An advisory panel, that includes an ethicist, a patient representative, a physician, an individual with training in legal issues, a nurse and a lay person will meet the scientific board on a yearly basis.